I am Beyond Broken

God I feel like I'm being dramatic but ask anyone who's been around me lately and apparently I'm doing really good or better than they think someone in my situation would. I feel like that's supposed to count for something but it doesn't feel like it. Honestly, it's kinda frustrating because I feel like no one gets where I truly am. I lasted longer than when I had my first breakdown but since then I just crashed and I crashed hard.... so much so that my emotions and depression are so out of control I don't feel myself

But first a PSA: PLEASE STOP ASKING ME ABOUT MY NEUROSTIMULATOR SITUATION!! Sorry for the CAPS but I just can't deal with it right now and talking about it over and over and over again. If yall have questions feel free to ask my parents, If you have me on facebook my parents are listed as family members and you can message them. If you follow my support page leave a comment or message, my dad helps run the page and he can contact you.

If yall know me yall know I can put a positive spin on anything well, just about anything. As a spoonie we come to terms that our body have failed us and at some point it comes to an epic proportion where we're like ok I get it you can stop now. But rarely does it get so bad that it's like ok the whole world gets the point now....

I met with my neurosurgeon recently and surprise! My nylon stitches were irritating my skin so yeah those suckers came out even if my body wasn't ready, thankfully it was.

I keep flashing back to random things that have been told to me this last year on this neurostimulator journey... coming in at #1 "the good thing is the most natural thing your body can do is heal"-my neurosurgeon. Of course he had no clue that I would be his 2nd patient EVER to reject the neurostimulator but that sentence haunts me. Sure you can argue that my body was still doing what was natural, rejecting something it thought that shouldn't be there, but yeah nope not flying with me right now....

And then there's the typical way people respond when anything bad happens in life. They try to keep you positive and let me tell you it drives me INSANE right now! (Yeah see told ya, it's not me in this body right now) I can't stand it! No I'm not going to let this be a forever pity party but for the love of God can people just let me feel the way I'm supposed to right now? Me not being all sunshine and rainbows right now is NORMAL in my situation. It's also HEALTHY instead of bottling up which will just make at least 3 other illnesses I have flare up. For real though, stress can do some crazy stuff to your body even when you're perfectly healthy.

I'm not saying that you can't try to cheer me up, I'm just saying stop trying to tell me how to feel or act or whatever. To cheer me up send me cute and funny videos or pictures on Facebook or something, talk to me, offer to spend some time with me. Let me decide what to do.

And with that, if I oddly answer your "how are you feeling?" Question it's because I'm tired of saying I'm hanging in there or I'm ok or some other kinda true but still total BS line. So many people use that line to start a convo, sometimes it's hard to tell who's just trying to start a convo or who's really checking in on me. And even then, we spoonies tend to shield yall from the uncomfortableness that comes with an honest answer which I am so done with right now. So if I blindly look at you and spit out some random words, just accept it. Even if I was ok with talking about how I truly feel, it's not something I want to talk about currently.

I'm so broken beyond repair you guys it's ridiculous right now. When my neurosurgeon told me I was irritated by my stitches I just busted out laughing because nothing can surprise me at this point. I'm already KO on the floor but I'm still getting hit. So I'm just laying here taking it, waiting for it to stop. The upside is I can't get any lower. (Woo i said something positive!)

I make the effort to be how I've been lately. Why? Part of it is for me and as much as I hate to admit it, part of it is for those around me. If yall see me making an effort maybe yall won't worry as much. If I make the effort, maybe I'll get back to bring myself. So if I continue doing the things I would normally do or were working on before everything happened, maybe I'll find myself standing back up in the process

Which brings me to a semi-random thought, why the hell aren't we more open and honest about the crap going on in our lives? Why do we feel like we just have to share the happy moments on social media? Why can't we be real with ourselves and others? I'm not saying let's let all the skeletons out of the closet but that outfit you hardly ever put on deserves to be worn more and who cares what people think it's an awesome outfit. We're so afraid to be accused of being a drag, negative, dramatic, or even throwing ourselves a pity party that we block the real crap we're dealing from our social media. And when people do, we look down on them which I'm sure some of yall are doing to me right now.
Why are we scrolling through pages envying other's life and not reaching out to people to help us get there? Why are we so afraid of getting help of any sort? We're human! We are social animals and social animals don't do EVERYTHING on their own. We are made to lean on each other and like everything there's a balance. There is such thing as being too independent.

Sorry that random part was written a few days ago while I was still drugged but I still stand by it. This might be the libra in me, but life is about balance and at least from my experience, it's also being honest with ourselves. But a lot of the times we end up dealing with things in an unhealthy way. We numb ourselves by having several drinks so we don't have to think about our feelings, or we bottle them up which notice it or not, does affect you, maybe not right away but it does at some point, you may not notice it but people around you will. Out mental health is just as important as our physical, we need to learn how to properly take care of our mental health and say screw it to the stigma.

I have been in and out of therapy since a year after I got sick thanks to the whole "she's a teenager so she must be stressed out" crap that you deal with being a teen with undiagnosed problems in a children hospital. I often compare my therapist as a friend with an outside view that you see at least once a week who shuts up and lets you talk about your problems and you know what? It's freaking amazing. I've been able to understand not only the way I think. process, and deal with things but others. Sure in my opinion it kinda makes things difficult, I find myself understanding where the person I'm upset with might be coming from but it always sets the light bulb off in my head. No, I don't lay down and get poked and prodded about what's going on in my life, nor am I forced to talk about things I don't want to talk about. And if you are seeing a therapist who do those things and it's not helping you, I highly recommend finding a new therapist.

Anyways, that's my health update and ramble/rant! Thanks for reading

Beauty in Pain and Suffering.

Now I have to admit, things have definately haven't gone the way I imagined lately.... And for the first time in a long, long time, I've asked myself why... I've gotten down and really depressed, still kinda am but not as bad...

But when  I was questioning why dont I just die or why cant i live life something kept playing in the back of my head, how Saints I've looked up to suffered and took the suffering. Now, I probably went around this the wrong way at first.. maybe still am... I would just not take any meds and not tell anyone (sorry mom and dad) They suffered physically, emotionally and spiritually. They did it for the glory of God. But I cant help but wonder how did they know? Some of them had encounters with God we know about but what about the others? How did they know? I'll admit I haven't been the best Catholic lately, but I do have the faith, I trust that God is doing this for a reason but I just don't know why..

And then there's today... Good Friday... when Christ went through so much torcher, pain and suffereing for the sake of us to have eternal life with him. Now, I am in no way comparing myself to Christ or Saints I'm far from that but it gives me strength in some weird way.

I've accepted that the life God has for me currently is a lot of pain, lost friendships, loneliness, a whole bunch of frustration, tears, and yearning for normalcy. I've accepted that there will be things I cant have and things I can but still have to bust my butt to get. I've accepted that jobs, school, and anything that I will have to be considered "relliable" for will come and go because its my health isn't reliable. I've accepted that the life I have hardly anyone can relate to or come close to even understanding.

I know I've come a long way from 7 years ago but the cycle gets very old... and now that i'm more aquanted with the real world... it sucks even more to try and wade it out or watch how much medication I take because of cost... Or to not complain and fight through so I can make money and go to work instead of going to doctors or hospitals and putting my family's money down the drain.

But that's probably the toughest part. When to fight and push and when to get help. I know anyone in life has issues with that in life such as when their coming down with a cold... It's just hard to keep hope... with hospitals they just get me comfortable run test, find nothing, release me and tell me to talk to my doctors... with my doctors its ok lets talk to all doctors check things out, nothing is ever found.

Now that I have this adhesions problem its a debate to open me or not... you see adhesions can't be seen unless you open the person up. It's a film your body produces and surgery can make it more likely, people can go their whole life with adhesions and not have a single problem, others arent as lucky. The two times they removed adhesions I got lucky because it was a ticking time bomb until i lost whatever part the adhesions was slowly wrapping around. They're occuring more often... and so far, there's no way to prevent them... so its open, remove as much as we can, close me up and hope i'll last for awhile...

I wouldn't wish this life on anyone... be it the physical pain or seeing it affect your loved one. The pain I see in my parents seeing me like this, is the worst pain imaginable... The look on my team of doctors and nurses face.... is just as bad... to see them clueless whats going on and how to help... I've been wondering what's worst, being told you're going to die or being told they don't know whats wrong.

i've also been wondering that what if there's one single underlying cause of this all... something so rare that people who are helping me now dont know about it...

Lost

Note this is a real personal blog entry.

Tonight we got word that my uncle in the Philippines died. It's bittersweet, he has been suffering for years with illnesses and is now at rest and no longer in pain but it's sad I never got to meet him.. I really don't know where I came from. My uncle was the only immediate biological family on my mom's side we had. Now don't get me wrong I'm thankful for the families that "adopted" us, but I wonder where I came from, why I am the way I am. Besides my family I have met very little of my biological relatives. Some full relative and other half relatives.... but I cant help but feel an emptiness.... everyone talks about how it is with their relatives and how much they look alike but I have no idea... My mom said when I was little I was a spitting image of my Aunt. I've seen a few pictures from my cousins and when I was little saw some pictures they would send but after awhile the phone calls and letters stopped. This was most likely because they did not have the money to do so. My mom was from a poor part of the Philippines. And I know some people are thinking "be grateful for what you have" or "at least you know who your parents are" and while yes this is all true I deserve to be down in the dumps too.

But what I'm mostly afraid of is how my mom will get through this. My mom is very emotional, to points it affects her diabetes and blood pressure we almost have to take her to the hospital because of her hysterical crying and carrying on.... That's why I cringe whenever there is bad news to give my mom. Although we had no idea this was coming. It was crazy though, my mom told my dad earlier today she felt like something bad was going to happen and she was right.

It's really hard on my mom because like many third world countries out there they think those who live in America have so much money. Most of yall probably are in America that reads this and know money isn't that easy. With my family we have just barely enough to live paycheck to paycheck. But I know my mom is feeling the guilt of not being able to send more. She knows deep down inside that there was nothing she could do but still feels the guilt.

After my mom calmed down I went to bed and told my boyfriend and all the tears just came out.... And something I wasn't expecting to hear came from him, he told me to say the rosary and divine mercy chaplet. My boyfriend and I are both catholic and we have faith but have been lacking in the devoting part. We ask each other to pray for one another when we need it and we truly believe in our faith but I guess the only excuse we can have is life gets in the way of the whole going to mass and things of that matter. So I wasn't quiet expecting that to come out of his mouth. But maybe it's a sign... because of things that has happened within my church I've stopped going. But maybe its a sign, oh who am i kidding, God is showing me he wants me back. I want to so bad but the things that has happened at my church makes it so uncomfortable to be there...  But I know this is an adventure I should take up and I'm going to try with all my might to do so.

Well that's all I got for right now. And for all yall that has read all this thank you. Although I know some might come across this that I don't want to but oh well. All I can say is just because my family has issues that yours don't or I sin differently than you doesn't make you or me any better than each other so stop judging. Might sound harsh but that's the truth. And your words and actions may have hurt me before but I am going to do my best to not let you have the upper hand to where I avoid certain places because that's not who I am and how my parents raised me. My parents raised me to be strong, yeah you might have knocked me down for awhile but I will ALWAYS get right back up.

A typical young adult thought...

That sums up how i'm feeling right now... Tempted to go into things that is easy money to get me by but not really wanting to unless I'm really desperate... And then I think about college and how I need to save up for that but I also need a car.... 

     

From that I think what do I want to do/major in. Yes my dream is to do Art therapy but i'm trying to be realistic too... And the problem I always have is i love everything I try to do that I have so many options instead of narrowing it down... which gets frustrating... There's also the problem of trying to be realistic but not settling for less... I still have the dream of being a marine bilogist so I can live and breathe nothing but dolphins at work. 

I know people go through what i'm going through all the time with so much uncertaincy but man can it bug the crap out of someone!!

Sorry I needed to vent. Aly out!